Saturday, December 29, 2012
Tuesday, December 25, 2012
Sunday, December 23, 2012
Hope everybody's having a great weekend. We seem to be having one hell of a storm in Daly City- it resembles a hurricane. Just watched the Hunger Games movie- what an amazing flick. I loved the books and I wasn't sure how they could possibly make this movie, but they did an amazing job.
Doing ok- my esophagus and trachea are pretty fried- 18 doses of radiation down, 7 to go. Shan just picked up this amazing concoction of lidocaine, anti-histamine, and maalox for me to swallow. I think this is an excellent opportunity to eat more ice cream. Thankfully I get a mini-break from treatment because of Xmas- radiation resumes on Wed, chemo on Thurs... Big giant hug to Sean's Mom Janet for making us a smorgasbord (sp?) of holiday treats, and Sean's Dad, who unfortunately I missed on Sat :(
We are trying to think up a post-radiation trip to Alaska to see the Northern Lights... Fairbanks?
Doing ok- my esophagus and trachea are pretty fried- 18 doses of radiation down, 7 to go. Shan just picked up this amazing concoction of lidocaine, anti-histamine, and maalox for me to swallow. I think this is an excellent opportunity to eat more ice cream. Thankfully I get a mini-break from treatment because of Xmas- radiation resumes on Wed, chemo on Thurs... Big giant hug to Sean's Mom Janet for making us a smorgasbord (sp?) of holiday treats, and Sean's Dad, who unfortunately I missed on Sat :(
We are trying to think up a post-radiation trip to Alaska to see the Northern Lights... Fairbanks?
Sunday, December 16, 2012
Saturday, December 15, 2012
Hey guys! Nothing exciting on this front. Just recovering from this week's chemo. Had coffee with Mata, Adam and Revio this afternoon. Revio was a really happy baby today, and I dig his brand new teeth! We're going to take it easy for another night (might stream the Pipe Masters contest) and then head down to Santa Cruz tomorrow night to see the Expendables at the Catalyst. Those guys put on an epic show. Radiation is fine- 13 down, 12 to go! Hi-YA!!
Tuesday, December 11, 2012
Hey everybody!
Chemo went smoothly yesterday, radiation's fine too (just got dose 10/25). Have a dry cough, but nothing else to report. Summer went for a night at camp Steve- she returned very happy and with a massive container of grilled steak!
Here are a couple pics of Willam (aka the little man, aka rat fink)
Chemo went smoothly yesterday, radiation's fine too (just got dose 10/25). Have a dry cough, but nothing else to report. Summer went for a night at camp Steve- she returned very happy and with a massive container of grilled steak!
Here are a couple pics of Willam (aka the little man, aka rat fink)
Saturday, December 8, 2012
Wow, everything's been wonderfully unexciting over here! Worked a busy half-day on Friday, am getting irradiated every day at 2- no side effects thus far. Gearing up for more chemotherapy on Monday. Had french toast on the back deck this am, aaaah. Pretty freaking nice sunny winter day at the beach! Ok- out to the yard to plant some stuff. Hope everybody's having a great weekend!
Tuesday, December 4, 2012
Sunday, December 2, 2012
Happy Sunday! So did I tell you that Sean bought a new Mercedes? OK, it's a white van (Sprinter), pervert-style. Traded in the Subaru and now we have a windowless molester van!
Everything going OK- just dealing with the last day of chemo-induced ileus (I think this is just another part of the neuropathy). Hopefully the gastrointestinal tract will be good as new tomorrow. Getting radiation #4 on Mon, no problems so far...
Hope everyone's getting a little bit of sunshine today!
Everything going OK- just dealing with the last day of chemo-induced ileus (I think this is just another part of the neuropathy). Hopefully the gastrointestinal tract will be good as new tomorrow. Getting radiation #4 on Mon, no problems so far...
Hope everyone's getting a little bit of sunshine today!
Thursday, November 29, 2012
Holy crap it's windy here, and gnarly double to triple overhead waves.
Radiation therapy went fine yesterday- am about to head over to El Camino for dose #2. They position me in the machine by using skin marks, then do a CT (every time). They then use the CT images to fine tune the positioning (by moving the table) for the actual treatment. The radiation gantry moves around me in an arc as the radiation dose is delivered. Varian RapidArc is the name of this- high tech, eh? This is so cool... I'm totally nerding out!
Radiation therapy went fine yesterday- am about to head over to El Camino for dose #2. They position me in the machine by using skin marks, then do a CT (every time). They then use the CT images to fine tune the positioning (by moving the table) for the actual treatment. The radiation gantry moves around me in an arc as the radiation dose is delivered. Varian RapidArc is the name of this- high tech, eh? This is so cool... I'm totally nerding out!
Tuesday, November 27, 2012
Great news! I start radiation tomorrow. It's 25 total doses, Mon-Fri, and the goal is to shrink all the enlarged lymph nodes inside my chest. This will improved the coughing and also wipe out nests of chemo-resistant cells, the end goal is to prolong this nice partial remission. Got chemo yesterday (Abraxane +Avastin+ Zometa) and am feeling awesome. Yahoo! Hope you guys are doing great as well.
Monday, November 26, 2012
Today I got chemo (Avastin, Abraxane, Zometa combo)- everything went fine. The radiation-plannning CTs from 10 days ago showed stable disease- yahoo!! The radiation oncologist said that he hasn't been able to construct a plan where my lungs don't get zapped, but he still thinks it is possible- he and the physicist are trying to solve the problem this week. I am so excited- it'll be a huge relief from the cough if they can zap those hilar and tracheobronchial nodes. Hooray!
Sebastopol was a blast!! Here's the view from our bed in the travel trailer:
Woke up early and had coffee on the deck that Sean built
Planted the #1 redwood tree of the season (5th overall). The ones from last season are green and looking super healthy. Have to clear chaparral and poison oak in the gully/creekbed ini order to clear a planting spot. Made tons of headway. Pretty snazzy poison-oak and tick- proof outfit (longs shirt tucked into long gloves and yoga pants, yoga pants tucked into socks, then Technu).
Woke up early and had coffee on the deck that Sean built
Planted the #1 redwood tree of the season (5th overall). The ones from last season are green and looking super healthy. Have to clear chaparral and poison oak in the gully/creekbed ini order to clear a planting spot. Made tons of headway. Pretty snazzy poison-oak and tick- proof outfit (longs shirt tucked into long gloves and yoga pants, yoga pants tucked into socks, then Technu).
Saturday, November 24, 2012
Hey!! Everything's going well. Planted a bunch of moss in the fern garden this morning, then watched football with Mata, Revio and Adam, and we're now headed north for an overnight in Sebastopol! I have a redwood tree to plant, trying to think of a name for it...
No news from radiation doc- expect to hear the verdict from my medical oncologist on Mon... Hope everybody has an awesome weekend! Wahoo!!
No news from radiation doc- expect to hear the verdict from my medical oncologist on Mon... Hope everybody has an awesome weekend! Wahoo!!
Thursday, November 22, 2012
Tuesday, November 20, 2012
Sunday, November 18, 2012
We had breakfast at the Fairmont with the Sveivens today! Butch and Sean smuggled me bacon from the buffet. I forgot about the tiny ketchups and tiny syrups... They're in the process of erecting a ridiculously large gingerbread house there (picture a dude in a cherry picker putting the gumdrops on).
My sister brought over my Grandma's photo album today, so I'm going to have to post some of these. My second favorite pic is this one of my beautiful Mom (and me looking like Jabba the Hut). My very favorite one takes place in the tub circa 1976 and Shan's going to have to give permission, hehe...
My sister brought over my Grandma's photo album today, so I'm going to have to post some of these. My second favorite pic is this one of my beautiful Mom (and me looking like Jabba the Hut). My very favorite one takes place in the tub circa 1976 and Shan's going to have to give permission, hehe...
Saturday, November 17, 2012
Thursday, November 15, 2012
Check out this Mexican Butterwort- this is in my orchid box with my minis. This is the active verion of the other butterwort I showed you which was in its winter rosette. This one I've had for 5 or 6 years and it's never made a rosette- just blooms full time. Plant looks too beautiful to be carniverous!
Wednesday, November 14, 2012
I saw the radiation oncologist at El Camino today. He's hoping he can irradiate the residual cancer in my chest- he's running an MRI tomorrow to see if he can safely hit all of the affected lymph nodes, now that they've shrunk. The main worry is hitting lung (which causes pneumonitis) and esophagus. Fingers crossed. Post-chemo stuff is fine, stomach a little off and everything still tastes funky, otherwise ok :)
Tuesday, November 13, 2012
Here's my little yard! You can't see the ton of vines that Sean removed this wkd (hehe) with the help of power tools. The vines took up the whole back of Janet's pickup truck (Tundra). He left those little bastards at the dump! My irises are all putting up new little fans- this time of year is so cool! Post-chemo stuff is going fine- pain is milder this cycle.
Sunday, November 11, 2012
Hey guys, everything going fine post-chemo. Taking it easy, went road tripping with Barb Kitchell on Sat. We went to one of my favorite places 'California Carnivores' which is this masssive nursery filled with carniverous plants and orchids. I accidentally bought 3 tiny carn plants:
This is a Mexican butterwort in its 'winter rosette' form...
Then we went to Dillon Beach- freakin beautiful and windy!
Friday, November 9, 2012
Happy Friday, my friends!!
Everything is fine on this end- had a pretty full day at work today, saw some of my favorite clients. Just got acupuncture with Ella.
Got Summer a doggie door so she can reach her porch potty- but she's afraid of the flap. Working on that this wkd... any advice other than giving treats through it?! Argh!
Everything is fine on this end- had a pretty full day at work today, saw some of my favorite clients. Just got acupuncture with Ella.
Got Summer a doggie door so she can reach her porch potty- but she's afraid of the flap. Working on that this wkd... any advice other than giving treats through it?! Argh!
Thursday, November 8, 2012
Holy crap, look at me 1 year ago going snowboarding at Kirkwook (with hair)- aaaah. Heeheee, it's snowing in Tahoe right now. Yah!! So who wants to snowshoe around and drink peppermint schnapps with me this winter?
Chemo went fine. Taking it easy. People keep telling me my voice is coming back- hiyaaaaa!
Chemo went fine. Taking it easy. People keep telling me my voice is coming back- hiyaaaaa!
Wednesday, November 7, 2012
Tuesday, November 6, 2012
This is my throat (my THROAT, you creepy pervs!). The left arytenoid is the side that got injected- you can see a couple of needle punctures. Throat way less sore than yest, Sean swears my voice is better. Yahoo. Still will be needing more milkshakes...
Here's what recuperation looks like- watching the ASP world tour (Coldwater Classic) on the computer with the Little Man and my Candy Corn Halloween slippers (thanks Janet!)...
Monday, November 5, 2012
Sunday, November 4, 2012
Saw Chasing Maverick's yesterday- I thought it was great. Gerard Butler is really awesome- I am so impressed! The teenage dude that played Jay was great- is he an actual surfer? The love story seemed a little unlikely the way they presented it (glamourous blond older high school girl falls for childhood friend), but maybe that's the way it happened in real life?! The Mav's footage is amazing! Went to dinner in Montara- that place (La Costanera) has the tastiest seafood and Pisco Sours!
Friday, November 2, 2012
Thursday, November 1, 2012
Wednesday, October 31, 2012
Tuesday, October 30, 2012
Thanks to everybody at work who came out to drink beers with me at Devil's Canyon! The band played Metallica and Foo Fighters just for me- Kristine knows Bray, the singer. They're normally an 80s band, so the Metallica (Seek and Destroy!) was very impressive (but wait a minute, Metallica was around in the 80s, right, so is it really so strange?)... Here are a pic from Sunday nite, more to follow!
For those of you who are following my laryngeal paralaysis (there is something wrong with my left recurrent laryngeal nerve), I just saw an ENT today, and he is going to inject my arytenoid on Monday under a short anesthesia. Apparently this will help prevent aspiration and also should improve my voice. But I will feel like I swallowed a golf ball for a week (!). Hurrah!!
For those of you who are following my laryngeal paralaysis (there is something wrong with my left recurrent laryngeal nerve), I just saw an ENT today, and he is going to inject my arytenoid on Monday under a short anesthesia. Apparently this will help prevent aspiration and also should improve my voice. But I will feel like I swallowed a golf ball for a week (!). Hurrah!!
Monday, October 29, 2012
Sunday, October 28, 2012
OK_ time to start blogging for real!! We just got back from Maui and it was insane- we saw a giant sea turtle at close range, looked him right in the eye... (we were kayaking and thought he was a rock). Ate tons of fresh fruit, drank lots of Mai Tais!
Got chemo on the 1st day back, 10/24, things are going fine side effect-wise.... no more chemo til 11/9 yahoo!!
Got chemo on the 1st day back, 10/24, things are going fine side effect-wise.... no more chemo til 11/9 yahoo!!
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